Today I bring the world’s challenges affecting me close to home. My good friends Herk and Wilma Hernandez have been helping their children with one of mysterious diseases that plague a small, but ever expanding group of the world’s people. Our culture is dominated by free enterprise, which is good, but many fall through the enormous cracks this system creates. Funding for research of rare diseases enlightens the effort for cure of such diseases, including Blood disorders in general. By understanding one, many disorders are better understood. Please read and assist in any way possible, as this is a tremendous challenge that affects us all, we just do not know when or how.
"Jakes on the Beach" at the Corner of New York and The Broadwalk on Hollywood Beach along with the Famous Curbstone Band will be playing and doing a Fund Raiser to help Save the Life of our Granddaughter. This Saturday, October 26th. They will be starting at 2 p.m. to 6 p.m. this Saturday, October 26th. Unfortunately, Herk and I will NOT be there but my Brother, Bob Cudlin, will be. Please Stop in. Listen to some Great Music. IF you would like to Read and Share more of Lauren's Story - Please Remember there is No Amount TOO Small - go to http://TalbertFamilyFoundation.org/pages/Lauren. PLEASE IF YOU CAN GIVE MAKE CERTAIN YOU PUT ON YOUR Credit Card or Check FOR: "LAUREN'S FUND"...Please again IF you can or are around the Ft. Lauderdale/Hollywood/Hallandale area; enjoy a Day at the Beach and Visit Jakes on the Beach- 595 N. Broadwalk, Hlwd 33019. Thank ALL of You for Sharing and Helping Our Family.
Wilma and Herk Hernandez, the Kyriakidis, Piscopo and Cudlin Families, love our Granddaughter, Lauren, needs a Life-Saving Immune Bone Marrow Transplant. Nat'l Institute of Health (NIH) in August for the First time in Lauren's 16 years of age; shared with her she may be able to live. This Transplant has NEVER been done successfully by NIH, Duke, Mayo, UCLA or a few dozen others. Lauren wants desperately to LIVE. She has touched numerous Lives in her short tenure in our World. She NEEDS a Strong Donor and close to $2M Dollars BEFORE Any Hospital will take the Risk. PLEASE SHARE HER STORY AND NEEDS. Thank Everyone for Their Help, Prayers and Donations
When Lauren was 2 ½ years old, her mother Cris found her lying in blood-soaked sheets and covered in bruises “it looked as if she had been severely beaten” recalls her father Otto Kyriakidis. Instead of a normal platelet count between 150,000 and 400,000, her platelet count was 4,000 per cubic millimeter of blood. Her initial diagnosis was I.T.P., but it was later found to be CVID (Common Variable Immunodeficiency), resulting in Lymphogrannulamotus and other immune disorders/diseases. Lauren inherited both parents’ nonfunctioning RAG gene, generally causing a baby to born with SVID or SKIDs. Since Lauren is still alive, the thought is that one of the RAG genes was functioning just enough.
In 2009, the National Institute of Health in Maryland joined in to research her unique disease. In addition to weekly treatments at the Children’s Hospital (CHOC), Lauren is also hospitalized at NIH yearly. Up until recently, her family was told there is no cure for her diseases, but now NIH has suggested an immune bone marrow transplant may save her life. Are you a match?
In November 2005, her sister Stacie found a lump in her own neck. A biopsy revealed that Stacie suffers from Castlemans’ disease, a very rare autoimmune disorder characterized by overactive immune cells developing in the lymph nodes. Stacie has already undergone several surgeries to remove part of her lymph nodes. http://www.choc.org/publications/coe_june2009.pdf http://www2.ocregister.com/articles/lauren-stacie-says-2519369-hospital-choc
The new “Healthcare Overhaul” won’t cover these kids’ lifesaving medical care
It is true that insurers can no longer exclude people with pre-existing conditions; but the “Healthcare Overhaul” won't cover these kids’ lifesaving medical care. We need between $800,000 and $2,000,000 in cash before a Hospital will even begin a bone-marrow transplant procedure (exact cost is yet undetermined).
"How do you Save your Kid's Life when $2M Dollars are Needed?" http://youtu.be/IHQkatC4G0k
(Denis Campbell speaking to Otto Kyriakidis on behalf of his daughter Lauren who needs a bone-marrow transplant).
Are you a match? Join the bone-marrow registry http://bethematch.org/Home.aspx For more info on the two sisters http://www.gofundme.com/46fizo
Thank you for taking the time to read this letter.
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